Parker told Glenn this weekend that if anything ever happened to him that he would kill himself to be with him. This made both of us sick. I tried to talk with him about it and he just told me that he wanted to be with is dad. I asked him why he didn't want to be with me and he said, cause you are not gonna die mom. That was pretty much all I could get out of him..:( I guess I will just keep trying to communicate with him, but that is a lot to swallow when you are 7. :(
Monday, March 29, 2010
Gonna be a long night!
Well let's see Glenn was up about 1 am and his stomach muscles were contracting and pushing out the meds from the pump. So I called and hospice came out changed the site...Tonight they had to increase the dose then realized that he would run out of meds at that rate in about 4 hours. Soooo I am now up waiting for the meds to be delivered from U of U, I will then be calling hospice again (this guy is gonna hate me) to come and change the bag. The fun never ends! From what I have read I am a bit concerned about how this is going. SPS folks are famous for not being able to have anything like a feeding tube or port because of the muscles contracting and kicking it out- so I am now a bit apprehensive about the whole deal. I guess we will just have to wait and see how it goes.